{"id":176525,"date":"2014-12-18T05:13:02","date_gmt":"2014-12-18T05:13:02","guid":{"rendered":"http:\/\/www.merindab.com\/private\/2014\/12\/18\/what-bothers-me-is-when-i-say-i-can-stand-and\/"},"modified":"2014-12-18T05:13:02","modified_gmt":"2014-12-18T05:13:02","slug":"what-bothers-me-is-when-i-say-i-can-stand-and","status":"publish","type":"post","link":"https:\/\/www.merindab.com\/private\/2014\/12\/18\/what-bothers-me-is-when-i-say-i-can-stand-and\/","title":{"rendered":""},"content":{"rendered":"
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What bothers me is when I say, \u2018I can stand\u2019 and my would-be helper stares at me with shocked disbelief. What, a person in a wheelchair who can stand? Can\u2019t be! Sometimes I\u2019m tempted to stand up, throw my arms open wide, and yell, \u2018It\u2019s a miracle! I\u2019m cured!\u2019 OK, I\u2019ll refrain.<\/p>\n

Not only can I stand, but I can walk some. Just not terribly far. For five minutes or so, I can walk like a normal person and fool everyone. After that, my left leg starts to drag and gets weak. Time to use my cane. At this point, I can still get around some. In fact, on my good days, I sometimes walk around on the shorter trails in our county, like Old Dillon Reservoir or Sapphire Point. I move slowly and my leg drags, but I can get around for a little bit.<\/p>\n

However, the amount of time I can walk is limited, and it\u2019s only on good days. With multiple sclerosis, my health and functioning can vary widely. There are good days and bad days. Also, I have trouble thinking and walking at the same time. This can be bad while shopping. I wind up blowing my budget, so I generally use my wheelchair.<\/p>\n

Thinking that everyone in a wheelchair is paraplegic leads to the thinking that you have to be paraplegic to use a wheelchair. There is one able-bodied person who has seen me walking, looking normal for a full five minutes, and has decided that there can\u2019t be anything wrong with me. She hasn\u2019t spoken to me for the last nine months because I was once unable to walk a half-a -mile to do an errand. I didn\u2019t have my wheelchair with me and it wasn\u2019t a choice that day. I guess she thinks I was faking it and just trying to get out of the errand. This \u2018all or nothing\u2019 thinking, either you must be paraplegic or you must be fine, can cause a lot of problems.<\/p>\n

This is the kind of thinking that prevents some people I know with MS from using a wheelchair for activities in which it would be beneficial. They decide that as long as they have any ability to walk, for however short amount of time, they will never use a wheelchair. They are afraid people will see them as more disabled than they are.<\/p>\n

They are afraid people will look at them with pity. They\u2019re afraid people will think they\u2019re \u2018faking it\u2019 if they use a wheelchair when they can walk a small amount.<\/p>\n

So many opportunities are lost then. If I would have been afraid to use a wheelchair, I would have missed out on shopping with my daughter for her prom dress. I wouldn\u2019t have missed that for the world.<\/p>\n<\/blockquote>\n

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Sandy Lahman,\u00a0Disability 101: Not everyone who uses a wheelchair is paraplegic<\/h1>\n

(via cardiacattack<\/a>)<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

What bothers me is when I say, \u2018I can stand\u2019 and my would-be helper stares at me with shocked disbelief. What, a person in a wheelchair who can stand? Can\u2019t be! Sometimes I\u2019m tempted to stand up, throw my arms open wide, and yell, \u2018It\u2019s a miracle! I\u2019m cured!\u2019 OK, I\u2019ll refrain. Not only can … <\/p>\n

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